Jonelle Roback, 55, a retired tax accountant, is one of scores of people with multiple sclerosis (MS) who have suffered debilitating side-effects after being put on to a cheaper new drug while in NHS care.
Here, she tells of her experience after being switched from the drug Tysabri on to its “biosimilar” Tyruko in May last year.
“I’d been on Tysabri since 2009 and had never had any problems with it. It’s a wonder drug for me and for a lot of other people. I was 100% stable on it and you’d never have known that I was ill. But when I went to Charing Cross hospital for my infusion last May I was told that they were changing the drug I got to Tyruko. There was no explanation.
“I immediately felt side-effects. I felt really tired – exceptionally fatigued – nauseous, had a headache and put on a lot of weight,…