‘Dylan was blind by the age of five and lost his ability to feed properly’ – father tells of devastation at losing son (12) to childhood dementia

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Family welcomes new funding for research on condition

Alan Finglas with his wife Michelle and sons Dylan and Jack in 2024

A father who lost his 12-year-old son to a form of childhood dementia has spoken of the devastation of seeing him deteriorate, losing his sight and ability to eat.

Alan Finglas and his wife Michelle, from Tyrrelstown, Dublin, were told of the life-altering diagnosis for their son Dylan when they sought a medical opinion in 2014 after having concerns about how their two-year-old was developing.

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